1 |
If you don't have Epilepsy,
are you the parent / wife / husband / child / boyfriend / girlfriend / carer
(etc) of someone with E? |
|
We are the parents/carers
of our eldest child, Kieron (Shrek), who has Epilepsy |
2 |
When were they first diagnosed? |
|
Kieron was diagnosed in March
1997 |
3 |
What type of Epilepsy do
they have? |
|
Kieron has a rare form of
Epilepsy called Landau Kleffner Syndrome or Continuous Spike and Wave Syndrome,
which causes severe speech and language difficulties |
4a |
What medication do they currently
take? |
|
Kieron currently takes Lamictal
75mg morning and 50mg night, Epilim 500mg bd and Resperidone 1mg bd |
4b |
What other medication have
they taken in the past to control their Epilepsy? |
|
Kieron has tried Topomax,
Tegretol and was recently weaned off Prednisolne (steroids) after just over
3 years PHEW!!!! |
5 |
Any other info you want to
share? |
|
Nothing interesting about
us, really, but love ESupport |