1 |
Have you got Epilepsy? |
|
I have non-epileptic seizures
and temporal lobe epilepsy |
2 |
When were you first diagnosed? |
|
I was diagnosed on 1/23/01. |
3 |
What type of Epilepsy do
you have? |
|
I have grand mal seizures |
4 |
What medication do you currently
take? |
|
I am currently taking neurontin
1800mg daily, zoloft 75mg, and ativan .5mg (decreased from 4 mg, woo-hoo!)
I first started with tegretol when I had my seizures, it had horrible side
effects and my neurologist at the time kept increasing the med. as my seizures
increased to 10 per day until finally I was on the highest dose and my neurologist
threw her hands up in the air and sent me for a sleep deprived eeg, since
then I've been on the neurontin which has hardly any side effects for me
except drowsiness. |
5 |
Any other info you want to
share? |
|
When I was first diagnosed,
I had to have 2 eeg's with those flashing lights, and that totally set me
off into a seizure with an extreme headache. When I was coming home from
the hospital after my sleep deprived eeg, I had to wear sunglasses, a hat,
and sometimes a blanket over my head constantly because the light bothered
me so much I would go into a seizure. I couldn't watch TV, the curtains
had to be closed so that my place of dwelling looked like a cave. It took
like 6 months for me to slowly introduce myself more and more to light through
therapy. Even now, certain kinds of light still bother me. I thought I was
the only one who had this, I felt like such a loner! |